I first became involved with AMEND in late 2017 after my baby son Asher was diagnosed with MEN2b at only 7 weeks old. Dealing with the aftermath of such a shocking and unexpected diagnosis was hard, but my family and I have fantastic support from Great Ormond Street Hospital, and Broomfield Hospital in Chelmsford.
I am keen to help others on their journey with rare endocrine disorders.
The next Regional Meeting for Essex will be held in the Autumn
Please check back for more information