Unlike in other European countries and in the US, the UK does not have a national database of MEN patients.  AMEND is determined to encourage research into MEN and its associated tumours, and therefore currently maintains its own confidential database of both members and non-members of AMEND who wish to be involved in research; statistical or clinical.

Until such time as a UK national MEN database is in place, patients interested in being involved in research can register their contact details and brief medical history with AMEND.  

• Researchers WILL NOT be put in touch directly with patients without the patients' consent
• Researchers DO NOT have direct access to the AMEND research database

Those wishing to conduct research using the AMEND research database are required to contact the charity.  Patients are then contacted by AMEND to determine their willingness to be involved with a particular research project.

Patients wishing to register can do so through the 'Become a member' page (though membership is not required).

Researchers wishing to use the database should contact the charity through the 'Contact Us' button at the top of the page.