AMEND is determined to encourage research into MEN and its associated tumours, and therefore maintains its own confidential database (Research Registry) of both patient members and patient non-members of AMEND who wish to be involved in future research; statistical or clinical.

AMEND complies with the UK Data Protection Act 1998 with regard to its Registry and all its operations.

Patients interested in being involved in future research can register their contact details and brief medical history with AMEND.  

• Researchers WILL NOT be put in touch directly with patients without the patients' consent
• Researchers DO NOT have direct access to the AMEND research database

Registered patients may only be contacted via AMEND to determine their willingness to be involved with a particular research project.

Patients wishing to register can do so through the 'Become a member' page (though membership is not required).

Researchers wishing to use the database should contact AMEND's UK Office