News Posted: 31/01/2012 | NET Patient Day Talk from Prof Ashley Grossman

News Posted: 13/12/2011 | MEN1 RESEARCH OPPORTUNITY

The MD Anderson Cancer Center and the University of Texas Health Science Center in Houston, Texas, USA are running a study to gauge patient opinion of Pre...

News Posted: 02/12/2011 | 4th QUARTER NEWSLETTER NOW AVAILABLE

AMEND's 2011 4th Quarter newsletter is now available in the Resources/Publications section for all registered members of AMEND.  If you are not yet a member but would like to view latest newsletters, please contact us.  Membership is FREE to all.

News Posted: 28/11/2011 | MTC Research Study Phase II

Dr Joel Smith, SpR, a Research Fellow from the UK’s University of Birmingham, received charitable funding for a project to investigate the genetics of medul...

News Posted: 15/11/2011 | Merton College, Oxford JCR Supports AMEND!
We are delighted to hear that the Junior Common Room at Merton College, Oxford University UK, has recently voted to support AMEND as one of their charities of choice.  Thank you to AMEND volunteer Callum Hackett for putting our name forward and we look forward to hearing about the JCR's fundraising activities!...

News Posted: 14/11/2011 | Charity Ball Tickets on Sale NOW!

Tickets are now on sale for AMEND's Black and Gold Charity Ball to be held on Saturday 19th May 2012 from 7pm until 1am at the Draycote Hotel near Rugby, Warwickshire, UK.  Tickets are just £40pp and all proceeds go to fund AMEND's work for MEN and endocrine tumour patients around the world.  Tables of 8 can easily be filled by gathering friends, family and colleagues for a fun night out, or just come as you are and meet some new friends.  Further information and a booking form...

News Posted: 13/10/2011 | Attention all UK MTC patients - Research Study

Dr Joel Smith, SpR, a Research Fellow from the University of Birmingham, has received charitable funding for a project to investigate the genetics of medullary thyroid cancer (MTC).

News Posted: 11/10/2011 | Thyroid Cancer Survey
The Butterfly Thyroid Cancer Trust, one of many groups with whom AMEND work cooperatively, have put together a survey to assess patient's experience of diagnosis and treatment for thyroid cancer.  They would be very grateful if you could spare a few minutes to complete their online survey which can be found at

http://www.butterfly.o...

News Posted: 05/09/2011 | New! US MEN2a patient information book!
MEN2a patients in the USA now have their very own adapted version of our popular patient information book.  Thanks to the help of our US medical advisors, you can now download the book for free from our Resources/publications/patient information section.  We'd love to hear your feedback....

News Posted: 04/09/2011 | Roadshow goes to New York!

The AMEND Roadshow is coming to New York in October!  Due to our increasing US membership, particularly in the New York State area, we are pleased to be able to run a meeting along the lines of our popular UK Roadshow meetings on Sunday October 23rd in central Manhattan, from 1:30 - 4:30pm.  Come and meet fellow patients and representatives of AMEND, check out our information resources, and let us know what you would like to see AMEND USA do for you in the future.  We are also ...

News Posted: 24/05/2011 | US FDA APPROVES SUNITINIB FOR PANCREATIC NEUROENDOCRINE TUMOURS

The US Food and Drug Administration (FDA) has approved the use of sunitinib (Pfizer's Sutent) for the treatment of patients with progressive, well-differentiated pancreatic neuroendocrine tumours that are unresectable, locally advanced or metastatic.  Read the full press release here:

http://www.pfizer.com/news/press_releases/pfizer_press_releases.jsp#g...

News Posted: 11/05/2011 | 2011 AGM & Information Day Success
A great day was had by all who attended our 2011 AGM & Information Day in Liverpool on Saturday 7th May.  Professor Alison Metcalfe presented her research into the communication of genetic risk to children and young adults (the basis of our leaflet on this subject) and a lively discussion followed.  AMEND's US Representative Vickie Baggett updated the membership on plans and current status of AMEND's presence on the other side of the Atlantic, and AMEND CEO Jo Grey spoke about the ...

News Posted: 26/04/2011 | US FDA APPROVES VANDETANIB FOR METASTATIC MTC

On April 6, 2011, the U. S. Food and Drug Administration approved vandetanib tablets (Vandetanib Tablets, AstraZeneca Pharmaceuticals LP), a kinase inhibitor, for the treatment of symptomatic or progressive medullary thyroid cancer in patients with unresectable, locally advanced, or metastatic disease. The use of vandetanib in patients with indolent, asymptomatic or slowly progressing disease should be carefully considered because of the treatment-related risks of vandetanib.

For furthe...

News Posted: 06/04/2011 | Prague Marathon Challenge for Med Student!
Natasha Kennedy, a Foundation year medical student and Bart's and The London Hospital Medical School in London UK is running in the Prague Marathon on May the 8th in aid of AMEND.  If you would like to sponsor Natasha please visit her Virginmoneygiving.com page at http://uk.virginmoneygiving.com/team/praguemarathon2011.  Go Natasha!!...

News Posted: 04/03/2011 | 1st Quarter 2011 Newsletter Now Available
Registered members of AMEND may now access our latest newsletter via the resources/publications menu to the left of the screen.  Happy reading!...

News Posted: 26/01/2011 | Children's Information Survey Still Open

Our online survey regarding AMEND's proposed production of information for children and teenagers is still open and we would very much like to hear your opinion!  It is a very short survey so if you can spare a minute, please visit http://www.surveymonkey.com/s/QQNXN8C and let us know your thoughts.  Thank you!

News Posted: 25/01/2011 | BIG LOTTERY FUNDS AMEND 2011 UK ROADSHOW
AMEND is delighted to report that it has received a grant from the UK's Big Lottery Fund to run a 2011 Roadshow.  The Roadshow comprises a series of informal meetings around the UK throughout 2011.  With events being held from Dundee down to Somerset, there's bound to be one near you.  So why not come along and meet other patients, peruse and take away AMEND's educational materials, talk with some of the UK's top specialists, and maybe even have a one-to-one session with AMEN...

News Posted: 11/01/2011 | Exelixis' XL184 Granted Orphan Drug Designation and Assigned the Generic Name Cabozantinib
Exelixis, Inc. announced yesterday that the U.S. Food & Drug Administration (FDA) has granted orphan drug designation to XL184 for treatmen...

News Posted: 04/01/2011 | New website for FIPA patients
A new organisation and website has been established to help those affected by Familial Isolated Pituitary Adenoma (FIPA).  www.fipapatients.org aims to help inform patients affected by these inherited endocrine pituitary tumours as well as raise awareness and encourage research into the condition.  Pituitary Adenomas are tumours that occur in the pituitary gland affecting around 1 person in every 1000 and causing a variety of symptoms.  Wh...

News Posted: 20/12/2010 | 4th Quarter Newsletter Now Available

Registered AMEND members can sign in now to view the latest newsletter via Resources/publications/newsletters.  Back issues are available for all to view but if you'd like to keep up to date, register with us now - it's FREE!

News Posted: 14/12/2010 | CCWC 'Adopts' AMEND!
AMEND USA is a step closer to becoming a reality thanks to the Crescent City Women's Club (CCWC).  This philanthropic group based in Northern California which forms part of the California Federation of Women's Clubs (CFWC) formally adopted AMEND as a project after an emotive presentation by AMEND US Representative, Vickie Baggett.  Vickie has volunteered with the CCWC and CFWC over the course of many years and is thrilled to have their support.  Being under the umbrella of the CCW...

News Posted: 29/11/2010 | AMEND on BBC Health News
'My Unusual Cancer' by BBC News Health Reporter Jane Elliott, details Phillippe Parker's struggle for a diagnosis of his pancreatic neuroendocrine tumours.  AMEND Trustee and Membership Secretary Janet French provides some statistics on diagnosis.  View the full article at http://www.bbc.co.uk/news/health-11838147. ...

News Posted: 29/10/2010 | NEW LEAFLET: Talking to Children About MEN
Talking to Children & Young People About MEN is the brand new patient information leaflet from AMEND.  The leaflet contains communication tips and answers a variety of questions that parents may have when it comes to discussing the existence and consequences of a genetic condition within the family.  Our thanks to the authors Alison Metcalfe and Gill Plumridge from Birmingham University for allowing AMEND to adapt their original work.  View the leaflet in Resources/Publication...

News Posted: 27/09/2010 | AMSTERDAM 1/2 MARATHON ATTEMPT FOR AMEND

Gill & Roger Waller will be running in the Amsterdam 1/2 Marathon on October 17th to raise money for AMEND.  Gill has MEN2a and lost her brother Jason to the disease in 2000 aged 35.  Help them raise loads of money by visiting:

News Posted: 09/09/2010 | UPDATED INFORMATION BOOK SET COMPLETE
All 5 Patient Information Books, originally written by AMEND in 2005, have now been reviewed, updated and redesigned.  The 2nd Editions are available to view and download from Resources/Publications/Patient Information in the left hand menu.  A grant from the Society for Endocrinology (www.endocrinology.org) for £3800 enabled the redesign and reprint of these popular books which, like all our resources, are made available in hard co...

News Posted: 07/09/2010 | LATEST NEWSLETTER NOW AVAILABLE
Registered members may now login to view the latest newsletter.  The 2010 3rd Quarter newsletter contains popular features such as My Story (MEN1) and Ask the Doctor, as well as new features such as Ask the Pharmacist....

News Posted: 27/06/2010 | FASCINATING DAY AT MD ANDERSON
Jo Grey had the absolute privilege to meet AMEND members, MEN patients, their family members and the endocrine team at the MD Anderson Cancer Center MEN Conference on Saturday 25th June.  A huge group of around 70 MEN1 and MEN2 patients listened to a packed day of talks from members of the team.  These included talks from world-renowed Dr Robert Gagel, surgeons Nancy Perrier and Elizabeth Grubbs, Genetic Counsellor Thereasa Rich, Specialist psychiatric nurse Mary Hughes, PGD and p...

News Posted: 15/06/2010 | UPCOMING UK AREA MEETINGS

The following UK AMEND area meetings have now been scheduled for 2010:  Northern - 10th July; South West - 17th July; Midlands - 14th August; East Anglia - 4th September.  If you would like further information or to book your place, please go to Contact Us.

News Posted: 15/05/2010 | 2012 Sahara Trek for MEN Research

AMEND has teamed up with Discover Adventure Ltd to offer its members and supporters the opportunity of a lifetime: a 10-day trek through one of the world's most beautiful, remote and challenging environments - the Sahara desert in North Africa.  AMEND needs at least 20 people to sign up for the trip which will run from 3-12 November 2012 and to raise at least £2500 each in sponsorship.  We're organising this now to give everyone the maximum time possible to raise the funds.&nbs...

News Posted: 28/04/2010 | DEBI'S LONDON MARATHON SUCCESS!
Congratulations and thanks go to Debi Gaddes, who completed last Sunday's Virgin London Marathon in 4 hours and 40 minutes, and still looked fresh as a daisy at the end!  Debi raised over £600 for AMEND which is outstanding.  Huge thanks from everyone at AMEND!...

News Posted: 26/04/2010 | HULL BALL CANCELLED
Unfortunately, due to circumstances beyond AMEND's control, the Fundraising Ball which had been scheduled for Saturday 12th June in Hull, UK, has had to be cancelled.  Ticket refunds are being arranged.  Apologies to anyone who had been looking forward to it....

News Posted: 09/04/2010 | UK CHIEF MEDICAL OFFICER'S 2009 ANNUAL REPORT PUBLISHED
This week saw the publication of Sir Liam Donaldson's 2009 Annual Report which includes a 7 page report on the current state of and recommendations for the management of rare diseases (like MEN).  Actions recommended include: strengthening the network of reference centres for rare diseases to enable better coordination of specialist services, including the transition from paediatric to adult services, and appointing a National Clinical Director for rare diseases to oversee the development o...

News Posted: 23/03/2010 | LOUISA RUNS AGAIN!
Please sponsor Louisa Hill as she aims for a personal best at the Manchester 10K run on May 16th.  Louisa is a regular and valued fundraiser for AMEND.  We wish her every success!  She is also the first to use our new fundraising site, Virginmoneygiving.  Support Louisa at http://uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserProfilePage.ac...

News Posted: 10/03/2010 | NEW! AMEND FACEBOOK GROUP

New social networking group for AMEND on Facebook:

http://www.facebook.com/topic.php?topic=13960&uid=10150134116450347#!/group.php?gid=10150134116450347

News Posted: 09/03/2010 | 1st QUARTER NEWSLETTER AVAILABLE NOW!

Fully registered members can now access the latest newsletter in Resources/Publications.  Don't forget to login first!  If you'd like to become a member to access the latest newsletters, get in touch - it is FREE!

News Posted: 02/03/2010 | JUNE MEN PATIENT CONFERENCE IN TEXAS
The MD Anderson Cancer Center in Houston, Texas USA will be holding a FREE one-day MEN patient education conference from 8.30am to 3.15pm on Saturday 26th June, 2010.  The programme includes updates on genetic testing, PGD, paediatrics and treatments with specific breakout sessions on topics such pancreatic tumour, MTC and pheochromocytoma treatments.  For more information go to www.mdanderson.org/departments/ccg.  To re...

News Posted: 26/02/2010 | 1st VOLUNTEER INDUCTION DAY!
Sunday 7th March will be AMEND's first ever volunteer induction day at our new office in Tunbridge Wells.  If you are interested in volunteering for AMEND and would like more details, please contact us - we would be delighted to welcome you.  Any excuse for a free lunch!...

News Posted: 20/01/2010 | WE HAVE MOVED!

Due to AMEND's expansion, Jo Grey and Janet French, who live within 1/2 mile of one another, have amalgamated their home-based AMEND workspaces into one local rented office in Southborough, Kent.  The AMEND administrative office, one of many others in the friendly Southborough Centre in Draper Street, means that the two can take advantage of the synergies of working together in one place, as well as within a less isolated working environment.  The official opening on Febru...

News Posted: 13/09/2009 | Swine Flu Information for Patients Taking Hydrocortisone

The following is a link to the Society for Endocrinology's fact sheet giving Swine Flu advice for patients taking regular replacement hydrocortisone therapy:

http://www.endocrinology.org/news/article.aspx?articleid=1646

News Posted: 14/07/2009 | SWINE FLU - public information update
The UK Health Protection Agency public information leaflet on the current Swine 'Flu epidemic can be found in our resources section, accessed via the menu on the left of the screen.  AMEND would urge anyone taking lifelong medication to make arrangements with their GP for additional supplies of medication and to discuss arrangements in the event that Swine 'Flu is contracted....

News Posted: 31/05/2009 | MEN PASSPORTS LAUNCHED AT AGM DAY

We are delighted to announce that the long-awaited MEN Passports were launched at AMEND's AGM & Information day on Saturday 9th May 2009 in Exeter, Devon, UK.  The Filofax-type personal file, which comes complete with a jolly yellow AMEND pen, allows easy recording of information such as tests and their results, medication, treatment, scans, hospital appointments and discussions.  The reception from both patients and health professionals has been very positive and we are sure th...

News Posted: 04/05/2009 | AMEND SUPPORTS DNA TESTING OF PRESIDENT LINCOLN

PRESS STATEMENT 4 MAY 2009

Patient group, the Association for Multiple Endocrine Neoplasia Disorders (AMEND), which provides information and worldwide support to patients with the ra...

News Posted: 08/01/2009 | Advance Security Sponsor AMEND for 2009!
We are absolutely delighted to report that national UK security firm, Advance Security have offered AMEND their support during 2009.  AMEND was nominated by Louisa Hill, Marketing Co-ordinator, who's step-sister suffers from MEN, and the company has already donated £500 for including our logo on their 2008 customer Christmas e-cards.  We are looking forward to working with Advance Security (www.advancesecurity.co.uk) on other fundrai...

News Posted: 11/09/2008 | SURVEY ON UK INSURANCE INDUSTRY
The Genetic Interest Group (GIG) are conducting a survey of patients with genetic disorders regarding their interactions with the UK insurance industry.  If you have had good or bad experiences of applying for products such as Life, Travel or Critical Illness Insurance GIG would love to hear from you.  Contact Ben Francis at mail@gig.org.uk or ask AMEND for a questionnaire....

News Posted: 27/08/2008 | TCF-UK NEEDS YOUR HELP WITH MTC DATABASE

Thyroid Cancer Forum UK (TCF-UK) is a UK national organisation that facilitates communication between consultants and scientists working in the thyroid cancer field.  It is a free and independent service available to all senior clinicians and scientists involved in the treatment of these diseases.  It promotes awareness of recent advances in thyroid cancer management through the distribution of journal abstracts and national/international meeting details, as well as facilitating dis...

News Posted: 19/08/2008 | Clinical Trial Travel Assistance Fund

News Posted: 18/08/2008 | $8.5 MILLION FOR MEN2 MTC RESEARCH
On July 30th 2008, the American Cancer Society announced that it had received a gift of $8.5 million from a single annonymous donor.  The gift is to be targeted at establishing a MEN2 Thyroid Cancer Consortium comprising 12 outstanding young scientists, whose aim will be to undertake research in order to better understand the origins of MEN2 and thereby help in the fight against medullary thyroid cancer.  The American Cancer Society expects this group to be in place by July 2009.&...

News Posted: 16/07/2008 | AMEND LAUNCHES FUND FOR ENDOCRINE NURSES
AMEND are pleased to announce the launch of a new fund for endocrine nurses.  The Julia Dunn Fund aims to encourage UK-registered nurses to learn about multiple endocrine neoplasia disorders and/or the endocrine tumours associated with MEN.  Named after the late MEN1 patient, Julia Dunn and made possible by the Dunn Houghton Trust, the fund will pay registration fees for up to 3 nurses to attend the Society for Endocrinology's annual National Endocrine Nurses' Conference Residential Co...

News Posted: 13/06/2008 | GENETIC DATA BANNED FOR INSURERS
The use by insurance companies in the UK of genetic test results was banned under a moratorium due to expire in 2011.  Today that ban was extended to 2014, allowing people undergoing genetic testing to take out insurance without having to reveal the results of genetic tests (with the exception of Huntington's Disease).  The next review of the moratorium will be in 2011....

News Posted: 12/05/2008 | AMEND MEMBERSHIP NOW FREE!
At AMEND's Annual General Meeting on Saturday 10th May in Edinburgh, the membership voted to abolish membership fees!  Now, if you wish to become a member all you need do is to fill in the registration form (see 'Become a member'), adding a voluntary donation if you wish.  AMEND is keen to be as inclusive as possible and hopes that this will encourage many more members to join the 'family'.  Many thanks to the Mrs Waterhouse Charitable Trust and t...

News Posted: 12/05/2008 | AMEND AGM & Information Day Success
Over 40 attendees (both members and non-members) gathered at The Melting Pot in the centre of Edinburgh in Scotland for AMEND's Annual General Meeting and Information Day on Saturday 10th May.  This is the biggest attendance to date; the 'weekend away' option being popular with those who travelled some distance, and the location being equally popular with those who live in Scotland and the far North and who thus haven't been able to attend previous events in the South. ...

News Posted: 28/03/2008 | MEN2 Website Film Production
Production has started on our MEN2 website film (along the same lines as the MEN1 version currently showing on this site).  AMEND is looking for UK-based patients to volunteer to appear in the film (particularly those with MEN2b) to talk about their experiences.  If you think you would like to help, please contact AMEND for a no-obligation discussion about what the process will entail....

News Posted: 06/03/2008 | Family Route Map Launched
Yesterday (5th March) saw the official launch in London of the Family Route Maps: a joint project between 6 small charities (including AMEND) and the Genetic Interest Group, funded by the Jeans for Genes appeal and an unrestricted educational grant from Genzyme Therapeutics Ltd.  The 6 Route Maps, one for each condition, aim to help patients on their medical journeys by signposting sources of information and services currently available in the UK.  Those issues signposted include medic...

News Posted: 15/02/2008 | Eurordis Photo Competition - living with a rare disease

This competition is open to anyone having an interest in rare diseases in Europe, whether members of Eurordis or not. You have until 31 March 2008 to send your most beautiful, unusual, or artistic photos. Only digital photos are accepted. You can submit up to five photos.

Winning entries will be announced and exhibited at the Eurordis 2008 Membership Meeting in Copenhagen (16 and 17 May 2008) and posted on the Eurordis website. Prizes will be awarded to the best picture pe...

News Posted: 29/11/2007 | Did Former US President Lincoln Have MEN2b?

Read this fascinating article in the Washington Post from Monday 26th November regarding one doctor's theory that former US President Lincoln had MEN2b:

News Posted: 21/11/2007 | UK's Human Genetics Commission Wants Volunteers

The Human Genetics Commission are looking for new people to join their consultative panel. This panel is made up of those directly affected by a genetic condition (either themselves or a family member) and is used by the HGC as a sounding board for its reports and recommendations and is a great way for patients to influence the agenda of this highly influential Commission.

If you would like any further information you can look on the HGC website

News Posted: 26/09/2007 | Matisse Study: A Pilot Study in Metastatic Advanced Thyroid Cancer Evaluating the Safety & Efficacy of Sorafenib (UK Drug Trial)

We have the following news regarding this trial:

The Royal Marsden Hospital in London is recruiting for a trial for thyroid canc...

News Posted: 30/08/2007 | PETITION! UK GP premium rate calls

Some telephone companies are encouraging doctors in the UK to sign up for premium rate telephone numbers such as 0870 and other non-geographical higher-cost numbers.

If you wish to sign a petition in an attempt to stop this, please use the following link

http://petitions.pm.gov.uk/NGN-use-by-GPs/

News Posted: 13/08/2007 | 100 Mile Bike Ride for AMEND's Treasurer!

AMEND's supersonic treasurer is at it again - this time a 100 mile sponsored bike ride!  If you feel you could sponsor Sam, please see the link below:

News Posted: 13/08/2007 | SCUMBALL 2007 - an epic fundraising journey..
 

It's 1000 miles there and back, we're wearing shades, and we're in crap cars...

News Posted: 21/06/2007 | PGD Public Debate - London - July 16th 2007

PARENTS OR PARLIAMENT: embryo testing, who decides?

News Posted: 21/06/2007 | 5-Year Review of AMEND's Activities - Can you help?

Dear Members and Non-members,

We very much value the input of everyone who uses AMEND's services, and, given we have now been in official existence for 5 years, it would seem like a good time for a serious review of what we do, and what we have planned.  Please take a couple of minutes to download and fill in the following form:

http://www.amend.org.uk/files/2007%20MEMBERS%20QUESTIONNAIRE.pdf

News Posted: 06/06/2007 | PARTY TIME!
AMEND is one of 3 charities benefitting from the 2007 Fall Ball in Leeds, UK on Saturday 6th October.  An excellent night of food, music and boogeying is planned and tickets are just £35 per person.  This is our first big-time foray into fundraising, so be there or be square!  Please express your interest to Emily at emily.fazal@amend.org.uk...

News Posted: 06/06/2007 | AMEND 2007 YOUNG INVESTIGATOR AWARD WINNER
Dr Chrysanthia Leontiou from St Bartholomews Hospital in London was named as AMEND's first ever Young Investigator Award Winner at the British Endocrine Society Meeting in Birmingham in March.  Dr Leontiou (on the left of the picture) presented her research into the pituitary at the AMEND AGM in April where she received her medal.  Congratulations to Dr Leontiou!...

News Posted: 19/05/2007 | AGM & Information Afternoon - Another Success

AMEND held it's annual AGM and information afternoon on Saturday 12th May, 2007 in London, UK.  The numbers of attendees are increasing all the time, and this year 31 people were present which made for some lively conversation over tea and biscuits as well as an extremely varied and useful Q&A session with AMEND Trustee and Consultant Endocrine Surgeon, Mr Mark Lansdown from Leeds.

Attendees were able to view prototypes of the proposed AMEND 'Passport', a patient-held record ...

News Posted: 12/04/2007 | FALL BALL FUNDRAISER!

Put on your glad rags and get on your dancing shoes ready for THE social event of the year!!

News Posted: 18/02/2007 | MEN2 Seminar, Sydney Australia, 25th March 07

The Association of Genetic Support of Australasia Inc (AGSA) is holding a MEN2a and 2b Seminar on Sunday 25th March 2007 in Sydney, Australia. Anyone interested in attending should contact the following:

Dianne Petrie
Director

The Association of Genetic Support of Australasia Inc. (AGSA)
66 Albion Street
Surry Hills NSW 2010 Australia

+61 2 9211 1462

www.agsa-geneticsupport.org.au

News Posted: 18/02/2007 | MTC DRUG CHILDREN'S TRIAL

Many thanks to ThyCa for this exciting piece of news.  The trials are currently only scheduled to open in the USA and Canada.  If, as may happen, they branch out elsewhere, we will let you know.

From: Jan Halzel, PHD, Moderator of ThyCa MTC Listserv, January 31st, 2007:

'I'm very excited to be able to share the news of a new study soon to be opening for children under 18 years of age with either MEN2a or MEN2b. The study is scheduled to begin in three to four months, alt...

News Posted: 19/01/2007 | Triathlon Fund Raiser
Jo's dear old friend Caroline Beasley has decided to put her fitness training career to the test by entering the Taunton Deane Triathlon on Sunday 20th May 2007 to raise money for AMEND.  The discipline comprises a 400m swim, 40 mile cycle ride and a 3 mile run (my eyes are watering already!).  If you would like to sponsor Caroline, please contact Jo through the Contact Us page.  Good Luck Caroline!...

News Posted: 07/01/2007 | NEW PATIENT INFORMATION BOOK ON SPORADIC MTC!
Go to the Resources Section of this website to download the latest AMEND Patient Information Book on sporadic (non-genetic) medullary thyroid cancer (MTC).  Written with the help of AMEND's medical advisory team, the book describes in detail, current monitoring and treatment for patients living with MTC....

News Posted: 20/11/2006 | UK Review of Health & Social Care Information

Review of Health and Social care Information

News Posted: 25/09/2006 | Family Route Map Survey now online!
Get involved in this project funded by the Jeans for Genes Campaign.  AMEND and the Genetic Interest Group are working to produce a Family Route Map of services currently available to MEN patients in the UK's NHS, to help with that bewildering maze and to ensure that patients ask the right questions at the right times thereby receiving the right treatment!  Visit the following link: 

News Posted: 04/09/2006 | Your Experiences
We are currently developing the Resources Section to include directories containing free view articles and personal experiences. If you would like to share your story with others on this website, then please contact Jo Grey on jo.grey@amend.org.uk....

News Posted: 04/09/2006 | Voice Change after Thyroidectomy/Parathyroidectomy
Visit the Resources/Publications section of this website where you will find this adapted article from Newcastle University, UK, regarding their study into the affects of thyroidectomy and parathyroidectomy on the voice.  With thanks to the authors, particularly Pauline Meek....

News Posted: 19/05/2006 | 4th AGM See Changes in AMEND Committee
AMEND's 4th AGM was held in London, UK, on Saturday 6th May.  Attendees, who came from all across the UK and even from California, USA, not only participated in the AGM itself, but also had a chance to meet others and to have questions answered by Dr Steve Gilbey, Consultant Endocrinologist from St James's Hospital, Leeds, and Trustee of AMEND.  As Liz Dent and Emily Fazal had decided to step down as Chair and Secretary but remain on the committee, positions were elected as follow...