|
 Addison's Disease Self Help Group
Offers support and information for those with non-functioning or, as in MEN2, surgically removed adrenal glands |
ARC (Antenatal Results and Choices)
For genetic counselling information and support to parents before and after antenatal testing |
British Association for Counselling and Psychotherapy
For information and advice on all aspects of counselling, including lists of accredited counsellors in your local area |
British Association of Endocrine and Thyroid Surgeons
The professional association for surgeons who operate on MEN and other endocrine tumours in the UK |
British Society for Human Genetics
This website contains a comprehensive directory of all 23 of the UK's genetic services centres, where genetic counselling and testing is provided |
British Thyroid Foundation
Support and information on all aspects of thyroid disorders and cancers |
Butterfly Thyroid Cancer Trust
Butterfly Thyroid Cancer Trust is the first registered charity in the UK dedicated solely to the support of people affected by Thyroid Cancer and is available to patients Nationwide |
Carcinoid Website - Sweden
|
Carcinoid Website - USA
|
Caring For Carcinoid Foundation (USA)
Excellent US resource for information on and support for carcinoids |
Contact a Family
Offers support and advice to families caring for children with serious disabilities or rare syndromes |
Cruse Bereavement Care
Helps and advises all members of bereaved families through confidential free counselling service (including trained child bereavement counsellors). Has extensive local network groups |
Diabetes UK
For information and advice on all aspects of diabetes which may be caused in MEN1 by the removal of the pancreas |
EndoBible
Practical guidance for doctors on endocrine diagnosis and management |
GeneReviews
University of Washington (NIH funded) website regarding genetic testing, diagnosis, management and counselling |
Genes are Us
Simple animated explanation of genetics for children produced by the Jeans for Genes charity |
Genetic Alliance UK
|
Genetic Alliance USA
|
Hypoparathyroidism UK
UK voluntary organisation supporting those with hypoparathyroidism (underactive parathyroid glands) |
Italian MEN Support Group
MEN support in Italy |
MedicAlert Foundation
An AMEND-recommended service providing medical identification emblems for patients with chronic medical conditions and/or who are taking life-long medications |
NEM France
MEN Patient Support Group in France |
Neuroendocrine Tumour Support Group
Support and information regarding NETs (carcinoids etc) |
Pancreatic Cancer UK
UK based support group for pancreatic cancers |
Pheo Para Troopers
US-based group dealing with pheochromocytoma and paraganglioma, including SDH mutations |
Society for Endocrinology
UK professional organisation for endocrinologists |
Teenage Cancer Trust
UK-based group for teenagers with cancer |
The Pituitary Foundation
For information on all aspects of pituitary disorders. Relevant for MEN1 |
Thyroid Cancer Forum - UK
Organisation facilitating communication between healthcare workers in the field of thyroid oncology and conducting nationwide research |
Thyroid Cancer Support - Wales
Small and friendly group of patients offering support for all thyroid cancer patients in Wales |
|
Up A Level
