Association for Multiple Endocrine Neoplasia Disorders

On Monday 7th September, we were thrilled to receive a Highly Commended certificate for our children's cartoons on MEN from the British Medical Association.

The certificate was awarded at a special ceremony of the BMA's 2015 Patient Information Awards at BMA House in Tavistock Square, London.

About our cartoons, the judging panel said, 'The animation has a strong visual identity and clear message.  The cartoon characters are amusing and support the message of the resource.  I liked the voices of the actors which were expressive and engaging.  Technical concepts such as cancer growth are explained clearly and succinctly.  The resource if fairly short but conveys a lot of information.'

AMEND creates high quality, easy-to-understand information adapted especially for patients (both adult and children) with the help of an expert medical advisory team.

This award is a fabulous recognition of all AMEND's hard work since the first resources were produced in 2005.

Watch our kids' cartoons here!

We are pleased to announce that our 2015 updated UK version of our popular Information Book on MEN2a is now available to download from this site.  The updated booklet now includes a glossary and many other improvements.

Click here to visit the webpage.

AMEND CEO, Jo Grey, and brave volunteer, Lu launched a new awareness raising campaign today to encourage other patients to be proud of their scars.

'Scars are our story and are nothing to be embarrassed about' said Jo.

Jumping on the backlash advertising to the controversial dieting powder, Jo and Lu with the help of AMEND's graphic designer, produced their own images to help others feel more confident on the beach in summer.

'Your scars show that you have been through a battle and came out victorious!' comments Lu.

Read more about the campaign here.

AMEND's latest newsletter (Issue 49) is now available to registered members to view and download on this site.  Please remember to log in!  Registration is free, so click here to become a member of AMEND and to access the latest newsletter.  Hear about our 2015 Summer Intern's experience, our 2015 Research Awards totalling £50,000, and much, much more.

There was something for all the family again this year at AMEND's Annual Patient Information Day on Saturday 9th May in Leeds.

Around 70 attendees enjoyed social time and a range of fascinating talks, not to mention a great Mindfulness experience session.

You can now view all the main presentations together with their integral slides on our website.

Click here to view the videos and write-up

Four research projects totaling £50,000 will be funded by AMEND this year.

Thanks to some exceptional fundraising by members and supporters during 2014, a special one-off fund of £40,000 was available specifically for research into medullary thyroid cancer (MTC), the most common cause of death in MEN2.  MTC also occurs alone and independently of MEN.  Winners this year were Professor Neil McDonald (London), Professor Chris McCabe (Birmingham) and Laura Moss (Cardiff).

As usual, the annual award of £10,000 was available for projects to do with MEN as a whole.  This year's winner was Dr Paul Newey (Dundee).

AMEND is delighted to be able to fund such a range of valuable research opportunities this year.

To read more, click here to visit our webpage.

In October 2014 AMEND made a submission on behalf of patients to the All Wales Therapeutics & Toxicology Centre in support of the appraisal for use of cabozantinib (Cometriq™) for metastatic medullary thyroid cancer (MTC).

We are pleased to report that the AWTTC confirmed on Tuesday 10th February, that the appraisal received Ministerial approval at the end of January 2015, and that cabozantinib will be available for use in patients with metastatic MTC by the end of April 2015.

Appraisal Lead, Dr Claire Davis expressed her thanks to AMEND for the submission: "I would like to thank you directly for your help with obtaining patient/carer views for the cabozantinib (Cometriq®) appraisal.  The information provided really helped to inform members of the appraisal groups."