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Contact Addresses:
AMEND Head Office
The Warehouse
No 1 Draper Street
Southborough, Tunbridge Wells
Kent, TN4 0PG
United Kingdom
Tel: + 44 (0)1892 516076
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AMEND USA Representative:
Mrs Vickie Baggett
PO Box 1212
Crescent City
CA 95531-1212
Tel: 707-464-7066 (PST)
Click here to email Vickie |
AMEND New Zealand Representative:
Mrs Siobhan Conroy
PO Box 87319
Meadowbank
Auckland 1742
Tel: 021 354 342 (before 8pm)
Click here to email Siobhan |
Note for members of the press: AMEND is a voluntary organization run mainly by patients suffering from multiple endocrine neoplasia and associated endocrine tumours. As such we request that you treat our contacts with politeness, respect and consideration, including ensuring that information obtained from AMEND are used accurately.
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Main Email:
Website Administrator Email:
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AMEND is run by patients for patients on an entirely voluntary basis. As such, we cannot guarantee that our contacts will be available when you call. They will however return any messages as soon as possible. |
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SOME OF OUR VOLUNTEERS
(As from May 2011)
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Emily Fazal, (Co-founder Honorary Vice President, Trustee)
Emily has MEN1, and founded AMEND in 2002 with her mother, Liz Dent. Married in 2004, Emily is a part-time trainer for the NHS and has one young son, so fits in her work for AMEND whenever she can. She is a member of the Trustee Board of AMEND, and participates in the Patient Support & Information and Finance & Fundraising sub-committees. Like her mum, Emily has had her pancreas removed, leaving her diabetic. She has also had 2 of her parathyroid glands removed, currently has a prolactinoma of the pituitary gland and has recently undergone liver surgery for pancreatic tumour recurrence. |
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Jo Grey, (Chief Executive Officer, Chair of Trustees, MEN2 Representative & Website Administrator) Jo has MEN2a, and is an “at-home” mum of 2 children, the youngest of whom also has MEN2a. She is a full-time volunteer for AMEND based at the Admin Office, and represents the charity and MEN patients at professional medical and patient conferences. With the help of AMEND's Medical Advisory Team, she wrote AMEND’s patient information books in 2005 and continues to work with the Team to ensure that AMEND's patient information is accurate, appropriate and up-to-date. She is also responsible for the production of AMEND's popular quarterly newsletters. Jo was diagnosed with MEN2a in 2000 and has since had both adrenal glands, her parathyroid glands and her cancerous thyroid and shoulder removed. Contact Jo at
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Janet French (Secretary & Membership, Trustee)
Janet has MEN2a and is the mother of AMEND’s Chairperson, Jo Grey. Although diagnosed after her daughter, she has nevertheless also had both adrenal glands, parathyroids and her cancerous thyroid removed. Now retired, Janet uses her considerable experience in administration to deal with all our membership enquiries, database and many other compliance issues and is a full-time volunteer for AMEND based at the Admin Office. Janet is responsible for organising patient meetings and also attends professional medical conferences to represent AMEND. Contact Janet at
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Vivienne Martin (UK MEN2b Representative)
Vivienne has two grown up daughters and a dog and works as a Special Needs Teacher in a Middle School with children aged 9-13. Her hobby is volunteering with the St. John’s Ambulance which she has done now for many years. Vivienne wanted to become involved with AMEND as her eldest daughter has MEN2b. She is keen to be able to give others support in coming to terms with this rare condition, is AMEND's registered and trained MEN2b Telebuddy, and is therefore responsible for AMEND's MEN2b members' group contact. Email Vivienne |
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Gill Underhill (UK MEN1 Representative)
Gill was appointed UK MEN1 Representative and a Trustee in 2010. She has had partial parathyroidectomy and currently has a stable pancreatic tumour. Gill is a registered MEN1 Telebuddy for AMEND, represents AMEND's MEN1 patients at medical conferences and patient meetings and is the main point of contact at AMEND for MEN1 patients. Email Gill |
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Vickie Baggett (USA Representative)
Vickie lives in Northern California and was appointed AMEND USA Representative in 2010 but has been a member and supporter of AMEND for many years since her diagnosis of MEN2a. She has considerble experience as a volunteer with the California Federation of Women's Clubs and is keen to expand the provision of AMEND's quality support and information services to all MEN patients in the USA. Vickie works closely with AMEND HQ in the UK and with the US Medical Advisory Team, as well as representing MEN patients at professional medical and patient group meetings throughout the USA. In May 2011, Vickie became a member of the Board of Trustees. Email Vickie |
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Siobhan Conroy (NZ Representative)
Siobhan has MEN1 and lives with her young family in Auckland. She was appointed AMEND NZ Representative in September 2011 after a number of years of being a member of AMEND. Siobhan also volunteers for the NZ Cancer Society and is the MEN contact person for the NZ Organisation for Rare Diseases. She will be working with our NZ medical advisor(s) to raise awareness of MEN and AMEND NZ with the ultimate aim of AMEND NZ becoming a linked but independent NZ-registered non-profit organisation. Email Siobhan |
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Karen (Telephone Counsellor)
Karen is a qualified 'person-centred' (Humanistic approach) counsellor who follows the British Association for Counselling and Psychotherapy Guidelines. She has personal experience of MEN within her family. Karen provides a confidential counselling helpline for our fully registered members and their families (over 18 years of age). Karen is also a contributor to our newsletters and provides emotional support to AMEND volunteers as well as one-to-one counselling by prior appointment at our AGM & Information Days. Contact details for Karen are provided upon registration.
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| THE TRUSTEE BOARD (as from October 2011) |
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| Professor Karim Meeran (Professor of Endocrinology, Imperial College London, UK) |
| Emily Fazal (as above) |
| Jo Grey (Chair, as above) |
| Janet French (Secretary, as above) |
| Mr Robert (Bob) Francis, JP |
| Mr Barney Harrison (Consultant Endocrine Surgeon, Royal Hallamshire Hospital, Sheffield, UK) |
| Gill Underhill (as above) |
| Judy Darwent (Specialist Endocrine Nurse, Royal Hallamshire Hospital, Sheffield, UK) |
| Irvine Caplan (Treasurer) |
| Vickie Baggett (as above) |
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| PATRONS (as from May 2011) |
Professor Rajesh Thakker MD ScD FRCP FRCPath FMedSci
May Professor of Medicine, University of Oxford, Oxford Centre for Diabetes, Endocrinology & Metabolism, Churchill Hospital, Headington, Oxford, UK |
Recorder, Mrs Jo Delahunty, QC
MA (Oxon) Juriprudence |
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Medical Advisory Team (as from June 2011)
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| Professor Rajesh Thakker (Oxford)1, Professor Tom Lennard (Newcastle)1, Mr Barney Harrison (Sheffield)1, Mr David Scott-Coombes (Cardiff)1, Professor Ashley Grossman (Oxford)1, Professor John Connell (Dundee)1, Dr Caroline Brain (London)1, Dr Fiona Lalloo (Manchester)1, Dr Samuel Wells Jr (NIH)2, Dr Constantine Stratakis & team (NICHD)2, CGC Ms Thereasa Rich (Houston)2, Professor Bruce Robinson (Sydney)3, Dr Electron Kebebew (NCI)2, Dr Richard Carroll (Wellington)4 |
| 1 UK, 2 USA, 3 Australia, 4 New Zealand |
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