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Contact Address:
Mrs Jo Grey
AMEND Chairperson
PO Box 89
Tunbridge Wells
Kent, TN2 9GL
United Kingdom
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Contacts:
MEN1: Liz Dent
Email:
Tel: 01423 780594 (9am-8pm only)
Fax: 01423 780959
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MEN2/Sporadics: Jo Grey
Email:
Tel: 01892 525308 (9am-8pm only)
Fax:
(Website Administrator)
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AMEND is run by patients for patients on an entirely voluntary basis. As such, we cannot guarantee that our contacts will be available when you call. They will however return any messages as soon as possible. |
THE EXECUTIVE TRUSTEE COMMITTEE AND VOLUNTEERS
(As at May 2007)
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Liz Dent (MEN1 Representative & co-founder President)
Liz founded AMEND in 2002 with her daughter Emily Fazal, after finding that all three of her children and herself had inherited MEN1. She juggles her work for AMEND with looking after her husband, children, dog and horse. Liz is a great believer in positive thought and complementary therapies, and has found these to be of great comfort since the removal of her parathyroid glands and her pancreas (she is now a diabetic). Contact Liz at |
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Emily Fazal, (co-founder Vice President)
Emily has MEN1, and founded AMEND in 2002 with her mother, Liz Dent. Married in 2004, Emily is a trainer for the NHS fitting in her work for AMEND whenever she can. Like her mum, Emily has had her pancreas removed, leaving her diabetic. She has also had 2 of her parathyroid glands removed and currently has a prolactinoma of the pituitary gland. |
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Jo Grey, (Chairperson, MEN2/Sporadic Representative, Website Administrator) Jo has MEN2a, and is an “at-home” mum of 2 young children, the youngest of whom also has MEN2a. She is lucky to be able to devote a good deal of time to all things AMEND, was instrumental in the production of AMEND’s patient information books and produces the quarterly newsletter. Jo was diagnosed with MEN2a in 2000 and has since had both adrenal glands, her parathyroid glands and her cancerous thyroid and shoulder removed. Contact Jo at
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Janet French (Secretary & Membership)
Janet has MEN2a and is the mother of AMEND’s Chairperson, Jo Grey. Although diagnosed after her daughter, she has nevertheless also had both adrenal glands, parathyroids and her cancerous thyroid removed. Now retired, Janet uses her considerable experience in administration to deal with all our membership enquiries, database and many other compliance issues. Contact Janet at
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Sam Meadows (Treasurer)
Sam lives in South Yorkshire with his two young children. He feels fortunate to have had a nearly normal and problem-free life despite having been one of several family members diagnosed with MEN1 by genetic screening in 1994. Sam has had his parathyroids and just over half of his pancreas removed but has found that it makes very little difference to his life, which encompasses all things sporty, including participation in regular triathlons. |
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Terry Green (Officer)
Terry has MEN1, and has had all of his parathyroids as well as his pancreas removed (resulting in diabetes). In addition, he has had transphenoidal surgery (through the nose) to remove a benign tumour from his pituitary gland. Terry works full time in communications and continues to embrace every adventure that life throws at him. As well as being a keen biker, one of Terry's favourite experiences is sky-diving!
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Vivienne Martin (Officer)
Vivienne has two grown up daughters and a dog and enjoys working as a Teaching Assistant in a Middle School with children aged 9-13. Her hobby is volunteering with the St. John’s Ambulance which she has done now for over twelve years. Vivienne wanted to become involved with AMEND as her eldest daughter has MEN2b. She is keen to be able to give others support in coming to terms with this rare condition. |
| Trustees (as at December 2006) |
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| Dr Stephen G Gilbey (Consultant Physician, St James's Hospital, Leeds) |
| Dr Jonathan Pinkney (Consultant Endocrinologist, Royal Cornwall Hospital, Truro) |
| Mr Mark Lansdown (Consultant Surgeon, Leeds General Infirmary) |
| Liz Dent (as above) |
| Emily Fazal (as above) |
| Jo Grey (as above) |
| Janet French (as above) |
| Sam Meadows (as above) |
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