The Association for Multiple Endocrine Neoplasia Disorders ( AMEND) is a patient support group and UK registered charity (no. 1099796) that was set up in 2002 by Liz Dent and her daughter Emily Fazal who both have MEN1 following a meeting with the Canadian MEN Society. Liz and Emily were concerned that, being diagnosed with a rare condition, there was little information to be found regarding best treatment, and even fewer fellow patients with whom to be in contact to share experiences – a process that so many people find helpful.
AMEND have a number of trained Telephone Buddies who are patients and carers affected by MEN themselves - talking to someone else in a similar situation may make things easier to cope with. Contact by email is also undertaken.
To improve the well- being of all persons affected by MEN by:
Providing support to patients and their families and friends;
Providing information about MEN and other relevant issues relating to genetic disorders,
Promoting a wider knowledge of MEN among the medical profession to assist in early and accurate diagnosis, and;
Assisting in future MEN research
Some of the information on the AMEND website is available in PDF format. If you don't have Acrobat Reader you can download it here:
